Doctor updates.

I found out yesterday that my appointment with Mayo coming up next month won't be just one day. They advised me to be prepared to have evaluations and tests for 3-7 working days. I figure that's what...34 days or about 5 weeks away. I know it isn't that far off but it seems like forever. So going there will be an adventure. My evaluation on that Thursday will determine if they will do more tests or if they want to bring in specialists etc. . I guess time will tell and until then try to stay distracted.

I spoke to a good friend of mine last night and learned that some of my previous co workers, who are dear friends, learned of my blog. This was also the first time any of them found out I'm not...well...not quite right. :) I'm really happy they found it and are reading it. It's nice to find out there are more people out there who care and want to support me then I thought. For those of you, my dear friends who have just found out please read on, this is for you.

Explanation:

When I first found out I had Chiari (pronounced: Key-ar-ee) I didn't believe it. I thought, "Me?! No I'm in great shape...I can't have something scary like this!" So I didn't tell hardly anyone. I didn't want people to find out and treat me like I'm sick. The "Poor you." and the "Awe. " Those of you who know me know I am a clown. I'm not shy about attention from that but this was not the attention I wanted. After I came to grips with the fact that yes I do have this and it is getting worse and I need to be fixed. I got mad. I stopped answering my phone and didn't want to talk to anyone. But now...I'm OK. I want to talk about it and answer any questions that you have. I know that some of your first instinct will be the same as mine, go to the Internet and scour for any info that you can get. But know that there is more I can tell you. There is some incredibly scary stuff online. Some true and some of it applies to me but other stuff not so much. Yes, I am sick and it is progressive. Yes, it is scary. But, I'm not terminal and surgery may fix it. This is brain surgery and I will have a decent amount of recovery time. The good news is I have support from all of you. So gimme a call or drop me a line. Let me know how you are and ask anything on your mind.

I'm ready when you are. And please feel free to leave a comment on any blog. I like to read them.

Thanks to every one in my life who is so supportive and wonderful. Thanks for the time you take and have taken to keep me distracted and going!

MWAH!! -AP